CJD Aware! Now Supplying Resource Information to Hospice and Palliative Care Organizations

With the apparent increase in Creutzfeldt-Jakob disease (CJD) awareness, CJD Aware! is currently supplying hospice and palliative care organizations nationwide with their CJD information packets.

"This was one of our key-topics of discussion at our annual staff/volunteer meeting in February," remarked Christy Brom, director and founder of CJD Aware!. "We receive inquires from hospice and palliative care organizations who sometimes find they are dealing with a patient who may
have Creutzfeldt-Jakob disease (CJD). Nurses face a considerable challenge when they attempt to provide comfort and support to these patients. They want to have information about CJD disease on-hand that will assist them as they care for the patient, and to help support the families. Our packets have gone out to organizations in the United States and Canada".

There has also been a definite increase in sales of CJD Aware's Research mugs to health care professionals.
"We have heard back from many customers who work in hospitals, physicians' offices and public health departments," said Lori Brom, volunteer coordinator for CJD Aware! "They tell us that our research mugs just sitting on a desk or in a break-room act as an extremely effective way to begin a dialog with people dealing with CJD. Hearing things like this gives all of us at CJD Aware! a great sense of satisfaction".
CJD Aware! is a non-profit, information organization based in New Orleans, Louisiana. The organization was formed in the spring of 2002 after the death of the founder's mother, Sara Brom, from the sporadic form of has a CJD. Mrs. Brom was 65 years old. CJD Aware!
has compiled a CJD packet available that they send out to individuals, and healthcare professionals who contact their office wishing information about CJD. CJD is an extremely rare and fatal, neurological disorder. At this time, there is no cure for this infectious disease.

Hospices and pallative care organizations not only provide psychological assistance to the patient, but allow families the chance to get some rest and recharge their emotional batteries. Thanks
to these professional caregivers, help and support are provided for patients and their families with any illness that is incurable and progressive, like Creutzfeldt-Jakob disease.